Run for Sunshine
Please donate to the Proteus Syndrome Foundation. The Foundation has been founded to support and educate families and professionals, and to raise money for research to find a cure for individuals living with Proteus Syndrome.
CLICK ON THE BUTTON BELOW TO DONATE NOW.
GROUNDBREAKING NEWS! THE CAUSE OF PROTEUS SYNDROME HAS BEEN DISCOVERED! Dr. Leslie Biesecker at the … [Read More...]
The 2010 Alex Hoag Run for Sunshine was an amazing event and we've got the photos to prove it! … [Read More...]
The Proteus Syndrome Foundation is a worldwide support group founded by Alex Hoag's mom in 1991. It supports research to find the cause of and cure for this disease. It also provides family support by helping families unite and by giving grants to families helping them buy much needed medical supplies such as wheelchairs, shoes, hospital beds, etc. More info at Proteus-Syndrome.org