GROUNDBREAKING NEWS! THE CAUSE OF PROTEUS SYNDROME HAS BEEN DISCOVERED!
Dr. Leslie Biesecker at the NIH has identified the genetic mutation that causes Proteus syndrome. For more information on this exciting finding see our FAQ and Medical Research sections.
Follow this link to the NIH website to learn more. http://www.genome.gov/27544866
Thank you for your support of the Alex Hoag Run and the Proteus Syndrome Foundation.
By running, walking, raising money, eating pancakes YOU HAVE MADE A DIFFERENCE !









Thank you for raising money!! This is truly a cause close to our families heart. ~Kim Hoag
I am waiting on Linda Staines to return to town from London tonight (7/19) and I will have her take a look at it. Promise to update as soon as I hear.