GROUNDBREAKING NEWS! THE CAUSE OF PROTEUS SYNDROME HAS BEEN DISCOVERED! Dr. Leslie Biesecker at the NIH has identified the genetic mutation that causes Proteus syndrome. For more information on this exciting finding see our FAQ and Medical Research sections. Follow this link to the NIH website … [Read More...]
From the Blog
Photo Gallery from the 2010 Alex Hoag Run for Sunshine
The 2010 Alex Hoag Run for Sunshine was an amazing event and we've got the photos to prove it! … [Read More...]
2011 March Proteus Syndrome Foundation Newsletter
I hope this newsletter finds everyone doing well. I apologize for the gap in newsletters. They are expensive to print and mail therefore I feel it is better to wait until I can fill them with valuable information instead of just printing something every month or two. The Alex Run was once again a … [Read More...]
